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Forum Index > Off-Topic Discussion > ADHD/Autism/Neurodivergencies and Other...
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Aelingalathynius
Level 75
Trickster
Joined: 7/9/2017
Threads: 37
Posts: 439
Posted: 12/30/2020 at 11:54 PM Post #1
So a large convo in chat ended with a bunch of people wanting a thread on this made - thread is here!

So first of all, hi!
I'm Aelin, I have:
- chronic depression
- general anxiety disorder
- ADHD :D

I'm a psychology major in university with a few AP/community college psych classes under my belt from my high school years as well - however, I'll do my best to provide source links as well so you don't have to take my word for what I say :)

This thread is dual use for providing info (please give sources with info to help guard against misinformation) and talking about your experiences; however, please try to keep it appropriate for sylestia - many topics with mental health are very triggering for a lot of people and just generally not a great public topic. Absolutely talk about stuff you experience with depression, but try to avoid *that* topic.

- if you need to talk about it feel free to pm me or anyone else who says they're OK with it, but do not post about self-harm/etc. on here please, and do not randomly pm users on this thread if they have not said it's a topic they're OK talking about :)

Also, as always - please be civil, I know mental health and neurodivergencies can be heated topics, but please don't accuse malice or attack other players. If someone's post is hateful or inappropriate, it will be reported. Sylestia's TOS also obviously applies.

Extra note: do NOT include Autism Speaks in your sources, they are considered a hate group by the vast majority of the autistic community. If this is new information to you, I am happy to pm you sources and information about that, but please do not cite them. If this is an issue for you, again, I'm happy to discuss over PM.

Post has been edited to be more ADHD reading friendly for those who need it - if you need a friendlier version for any post on here, please PM me and I will provide one :)

OK, share away my friends!
Edited By Aelingalathynius on 1/4/2021 at 10:29 PM.
Aelingalathynius
Level 75
Trickster
Joined: 7/9/2017
Threads: 37
Posts: 439
Posted: 12/30/2020 at 11:54 PM Post #2
Reserved, will add info/etc. in a few minutes :)
Welp that was a lie xD - I will update this thread tomorrow I promise, and others are welcome to post as well :)
Edited By Aelingalathynius on 1/4/2021 at 4:55 PM.
Aelingalathynius
Level 75
Trickster
Joined: 7/9/2017
Threads: 37
Posts: 439
Posted: 12/30/2020 at 11:55 PM Post #3
Reserved just in case :)
WingsOfAmber
Level 75
The Majestic
Joined: 11/8/2015
Threads: 34
Posts: 958
Posted: 1/4/2021 at 11:08 PM Post #4
Thank you Graven, for giving me the courage to do this :)

Hello, my name is Amber! I'm a 19y/o college student diagnosed with generalized anxiety disorder. However, I am working towards getting tested for autism/talking to my therapist about it once she returns from maternity leave. I used to see a student psychologist but I never understood why. I never talked to him about this stuff either.

My mother had previously asked about testing for autism when I was first diagnosed with anxiety, but it was declined since my more drastic symptoms did not appear until my freshman year of high school and I had done well in school before then. However, I am hearing this is the case for many, so I think it is worthwhile for me to bring it up again, due to other reasons as well. My mother also mentioned I was very repetitive as a child, but I have no memory of this. My memory of childhood is spotty in general regardless.

I have some issues that are not helped by my medication, or habits that medication obviously won't solve.

I still require a "security object", which in my case is a pink baby's blanket. I've had one for as long as I remember, if it wears out, I get a new one. I have trouble sleeping without it, and when I am in a state of high anxiety I press my face into it or fidget with it. I consider myself very lucky that my dorm roommate has ADHD and is also an Education major who understands and doesn't consider it odd!

I also have both issues with various auditory and visual sensory triggers. (apologies if that is phrased weird, I don't know how else to describe it?)

I do know that some auditory triggers (mostly noise level) are directly caused by anxiety and are something I have been working on throughout the years. However, prolonged loud noise can still put me on edge. Another part of this is another thing that's hard for me to explain. Like, multiple noise channels at once trigger anxiety and make me feel like "shutting down". For example if both a T.V. and a video on a laptop are playing at the same time. I can usually handle multiple conversations going on around me unless something has triggered my anxiety beforehand. I don't know how much sense that paragraph made.
Other specific auditory triggers I've been able to identify are high pitched dog barks, babies crying or screaming, and chewing noises. (I know chewing noises are generally a pet peeve for some folks, but for some reason prolonged chewing noises trigger anxiety for me. No idea why or how that one could have possibly manifested, lol.)

Visually, LED lights are the devil. That is all.

I don't know if this directly fits the definition of "hyper focus" (I don't think it does), but I will definitely majorly focus on one game for a week or two, maybe a month, then just.. drop it. This has happened a lot in my history on Sylestia even, with this being my longest stretch of being active on here (since Summer Festival, with a small break during Fall Fest for finals).

I had a hard time going into crowded places for many years, but at this point I am able to shop and order food on my own. I also have a job! (albeit custodial, so I don't have to interact with the public!) I consider myself very lucky that my mother was (and still is) such an advocate for me. Thanks to her pushing the school system, I was able to get an IED my senior year and finish on time with my class.

I found that having an animal in my life to take care of helps a lot, though aquarium keeping is growing more into a hobby! I consider one of my fish to be an ESA, since I have had him over a year now, and he interacts with me a lot. I also find it really calming to just watch him when I'm stressed. He is super wiggly and cute and he can blink!! I could gush about him all day! I also keep two betta (one stays at home, the other comes to my dorm), though one is growing old. I also have a cat, but due to her medical conditions I can't bring her to the dorm, since where I go to college is too far away from the vet in the case she had an emergency. She always comforts me if I'm dealing with stuff at home.

I am slowly working on maintaining the anxiety portion of my life, but I know there can be overlap between it and autism. My main focus is still recognizing when I'm anxious and if I can identify why.

So yea, I think I took an hour and a half to write this? I might've rambled a bit somewhere. I might add more if I can remember, sometimes there's just small quirks that pop up. I'm not used to talking about my mental conditions online, so this is very new to me. I believe in what Graven mentioned- that my experiences could help others, especially since I am looking at getting testing or reevaluated for autism. I don't know what the first step in that is, other than talking to my therapist.

It did feel really good to type all this out though. I've thought a lot about some things but never got them into words before!
Aelingalathynius
Level 75
Trickster
Joined: 7/9/2017
Threads: 37
Posts: 439
Posted: 4/21/2021 at 12:25 PM Post #5
So I know this thread isn't super active (and I keep saying I'll post and not doing it whups, but thought I'd throw this on here for people to see anyway.

Cw for ableism and Autism Speaks. Please give it a read - it's sad to see how mainstream a lot of ableism and misinformation is.
https://crippledscholar.com/2021/04/20/boycott-color-the-spectrum-finance-the-spectrum-instead/

Tl:dr is:
- Don't support NEXT for Autism
- Mark Rober needs to do a lot better
- Please don't support the Color the Spectrum event
Wormyy
Level 33
Joined: 4/27/2021
Threads: 1
Posts: 17
Posted: 4/28/2021 at 6:55 PM Post #6
thanks for sharing you two! its really uplifting to see other people struggle like i do. we're not alone!!!

i have GAD, major depression, an eating disorder, and OCD.
the OCD and Anxiety affect my life heavily, and it makes it really difficult to be like "normal" people.
I don't have too much to say on this, i just wanted to add in that i too struggle and i'm okay if people PM me to talk about their struggles.

always here for you guys. i know how it is. stay strong.
HauntingSpirit
Level 75
Trickster
Joined: 2/2/2019
Threads: 50
Posts: 1,472
Posted: 6/10/2021 at 10:04 AM Post #7
I actually suffer misophonia so I'll quickly explain what that is.
I also have PTSD, Autism, Anxiety, Depression and OCD which I can also explain if anyone wants. Just ping me, and I'll make a post :)
Sources will be linked at the bottom.

What Is Misophonia?
Misophonia is a sound sensitivity syndrome that causes severe emotional reactions to certain noises. It's commonly mistaken for "this sound drives me crazy". People with misophonia may experience nausea, a sense of dread, anger, fear, annoyance, and even pure panic and terror (among other things) when exposed to triggering noises. Misophonia causes a fight, flight or flee response in the brain, and reactions may vary.

-----------------------------------------------------------------------------------------------------------

Most Common Triggers
The most common triggers are chewing, whispering, clicking noises and wet sounds, although triggers vary from person to person. Triggers are usually repetitive and annoying sounds, but not everyone with misophonia has the same triggers or reactions.

-----------------------------------------------------------------------------------------------------------

What Causes Misophonia?
Scientists and doctors aren't entirely sure, however the explanation that seems most likely stems from a functional issue in the brain's limbic system, the autonomic nervous system and the auditory cortex. Misophonia usually appears in children between the ages of 9-13, but may also develop in older people. Misophonia is considered a sensory overload, which can cause anxiety attacks and other negative reactions.

-----------------------------------------------------------------------------------------------------------

Common Symptoms
Hypersensitivity to sounds
Outbursts of negative emotions
Avoidance of places that cause triggering sounds

-----------------------------------------------------------------------------------------------------------

Common Reactions
Hyperventilating
Panic Attacks
Outbursts of negative emotions
Mental breakdowns

And in severe cases: (spoilered for triggering content)
Self harm
Destruction of property, items, furniture
Physical assault


-----------------------------------------------------------------------------------------------------------

Treatments
Although there aren't any medication that can magically cure misophonia, there are ways to treat it and cope. People with misophonia can seek treatment through counseling, speaking with neurologists or audiologists, or even just speaking to a doctor. Other solutions may include wearing noise-cancelling headphones, daily exercise and other healthy activities.

-----------------------------------------------------------------------------------------------------------

My Personal Experience
I've had misophonia for as long as I could remember, although it died down in middle school. It recently flared up again, which has been quite a struggle.

My triggers are mechanical sounds, screeching, whispering, wet sounds and chewing. I also cannot stand when people talk loud, although that may be related to another condition I have. My reactions include heavy breathing, feeling a strong sense of dread, mental breakdowns and panic attacks. I cope by listening to music and wearing headphones.

I remember once in middle school, I had a severe reaction to a saw in our workshop class. I was sent to the principal's office and pretty much everyone believed me to be overreacting. I dropped out of that class as my teacher refused to give me headphones.

-----------------------------------------------------------------------------------------------------------

Sources:
Harvard Health Blog
Wikipedia
Healthline
Carrotgirl2000
Level 66
Master Egg Hunter
Joined: 8/23/2020
Threads: 16
Posts: 332
Posted: 6/10/2021 at 3:31 PM Post #8
Hi its really cool how you have this thread so please can talk and support each other
I have ADHD and Dyslexia
Im not really sure what else Im meant to share
Caspy
Level 63
The Perfectionist
Joined: 8/8/2021
Threads: 9
Posts: 52
Posted: 11/29/2021 at 3:23 AM Post #9
My name is Sylb :) I've been diagnosed with ASD, Social Anxiety and I am in the process of getting a proper assessment and diagnosis for BDD
Marionettez
Level 61
The Sweet Tooth
Joined: 7/14/2019
Threads: 115
Posts: 2,897
Posted: 11/29/2021 at 4:43 PM Post #10
I really like this thread, I'm Mike and have ADD and Social Anxiety, I know ADD isn't the same as ADHD but its relatively similar so ye, I don't really know what else to put here so, hi. Have a good day :D
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